Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

West Kootenay mom promotes awareness of cystic fibrosis

Marianne Krause wants people to know what it’s like for her five-year-old son to live with CF

A Grand Forks mother is promoting awareness of Cystic Fibrosis (CF) on behalf of her afflicted son.

Over 4,600 Canadians live with CF, a genetic disease that causes chronic lung infections among sufferers, most of whom are children, according to Cystic Fibrosis Canada. Five-year-old Bayne Krause is one of them.

READ MORE: Make-A-Wish: Hillary, 17, goes on dream shopping spree for horse gear

READ MORE: B.C.’s ‘extremely medically vulnerable’ can begin booking COVID-19 shots

Popular misconceptions about the disease are a constant source of frustration for parents like Bayne’s mom, Marianne.

On the one hand, Marianne says people commonly mistake Bayne’s persistent coughing and sweating — the hallmarks of CF — for COVID-symptoms. Bayne does not have COVID, nor is he infectious to others, she told The Gazette.

“My son coughs a lot because he needs to clear his lungs. He is not contagious,” she explained.

On the other hand, she said that people frequently take issue with her vigilance around Bayne’s health. Unlike most five-year-olds, Bayne has to wear a face mask. And he relies on other people not only to wear their face masks, but also to maintain social distancing around him — even though he is almost irresistibly cute.

Kids like Bayne can’t risk getting sick, but it happens. Marianne said it’s touch and go when it does, which is why she said Bayne was rushed to Trail Hospital when he came down with a cold last June. Bayne doesn’t need a fever on top of his condition: His lungs are congested at the best of times, just as his constant sweating leaves him perennially at risk of dehydration.

Most people’s lives don’t revolve around these hard truths, so Bayne literally wears them on his chest.

“I have Cystic Fibrosis,” his T-shirt reads, “Help keep me healthy — please social distance.”

Bayne and his family have gone to great lengths to keep him safe. He hasn’t attended school since the pandemic, Marianne said.

Marianne is asking people who meet Bayne to please respect her and step-dad Charlie’s wishes. Understand that they are taking all the necessary precautions to safeguard his health.

Bayne likes playing disc golf. He likes playing games on his tablet. He likes doing all the things you’d expect most five-year-olds would enjoy. But he needs to take all necessary precautions to stay safe; so that, when the pandemic lifts, he can go back to living his best life.

May is Cystic Fibrosis Month. Marianne and Charlie are asking people to consider wearing the signifying purple ribbon on May 26.

For more information about CF, please consult Cystic Fibrosis Canada’s website at cysticfibrosis.ca.

Grand ForksHealth

Just Posted

FILE – Perry Bellegarde, National Chief of the Assembly of First Nations, takes part in an event on Parliament Hill in Ottawa on Tuesday, July 7, 2020. THE CANADIAN PRESS/Sean Kilpatrick
Indigenous Peoples Day must be a ‘call to action’, says Assembly of First Nations chief

Discovery of children at Kamloops residential school site must lead to change, Perry Bellegarde says

Trees blown over by a windstorm in forest owned by Anderson Creek Timber. Photo: Anderson Creek Timber
Timber company logging near Nelson raises local concerns

Anderson Creek Timber owns 600 hectares of forest adjacent to the city

Keith Smyth, Kootenay Savings director at-large joins children from the Kids’ Care Centre at St. Michael’s Catholic School. Photo: Submitted
Kootenay Savings continues credit union’s tradition of giving

Funding totalling $48,250, is going to a wide array of Kootenay initiatives

From left: Karl Luedtke (West Arm Outdoors Club), Dale Williams (BCWF), Molly Teather (FLNORD), Gord Grunerud (West Arm Outdoors Club), Eugene Volokhov (Grand Prize Winner), Casey McKinnon and Lex Jones (Jones Boys Boats). Photo: Tammy White, Whitelight Photography
Balfour man lands big prize from angler incentive program

Eugene Volokhov of Balfour is now the proud owner of a sleek 18-foot Kingfisher boat

“I want to see the difference in the world, embrace it, celebrate it … ” Photo: David Cantelli/Unsplash
A new way to say ‘Hello’

“Inclusion, you see, is NOT about making us all the same.”

The border crossing into the United States is seen during the COVID-19 pandemic in Lacolle, Que. on February 12, 2021. THE CANADIAN PRESS/Paul Chiasson
VIDEO: Border quarantine to soon lift for fully vaccinated Canadians

Eligible travellers must still take multiple COVID-19 tests

Chilliwack secondary school’s principal is apologizing after a quote equating graduation with the end of slavery in the U.S. was included in the 2020-2021 yearbook. (Screenshot from submitted SnapChat)
B.C. student’s yearbook quote equates grad to end of slavery; principal cites editing error

Black former student ‘disgusted’ as CSS principal apologizes for what is called an editing error

Skeena MLA Ellis Ross. (Photo by Peter Versteege)
BC Liberal leadership candidate condemns ‘senseless violence’ of Okanagan church fires

Skeena MLA Ellis Ross says reconciliation isn’t about revenge for past tragedies

A coroner’s inquest will be taking place at the Capitol Theatre in Port Alberni for the next week. (ELENA RARDON / ALBERNI VALLEY NEWS)
Teen B.C. mom who died following police custody recalled as ‘friend to many’

Police sent Jocelyn George to hospital after intoxication had gone ‘beyond the realm’ of normal detox

FILE - In this Nov. 29, 2020, file photo, Las Vegas Raiders defensive end Carl Nassib leaves the field after an NFL football game against the Atlanta Falcons in Atlanta. Nassib on Monday, June 21, 2021, became the first active NFL player to come out as gay. Nassib announced the news on Instagram, saying he was not doing it for the attention but because “I just think that representation and visibility are so important.” (AP Photo/John Bazemore, File)
Nassib becomes first active NFL player to come out as gay

More than a dozen NFL players have come out as gay after their careers were over

Penticton Indian Band Chief Greg Gabriel speaks to the Sacred Hearts Catholic Church burning down early Monday morning, June 21, 2021. (Monique Tamminga Western News)
Penticton band chief condemns suspicious burning of 2 Catholic churches

Both Catholic church fires are deemed suspicious, says RCMP

COVID-19 daily cases reported to B.C. public health, seven-day moving average to June 17, 2021. (B.C. Centre for Disease Control)
B.C.’s COVID-19 infections drop to 90 on Sunday, 45 Monday

Pandemic spread dwindles as 77% of adults receive vaccine

By protesting uninvited in First Nations’ territories, conservationists are acting in a neocolonial or paternalistic manner, says Huu-ay-aht Chief Robert Dennis. Photo by Heather Thomson
A closer look: do Vancouver Island First Nations support the war in the woods?

First Nations/environmentalist old growth alliance uneasy, if it exists at all

A blood drive in support of 1-year-old Rielynn Gormley of Agassiz is scheduled for Monday, June 28 at Tzeachten First Nation Community Hall in Chilliwack. Rielynn lives with type 3 von Willebrand disease, which makes it difficult for her to stop bleeding. (Screenshot/Canadian Blood Services)
Upcoming blood drive in honour of Fraser Valley toddler with rare blood condition

The Gormley family has organized a blood drive in Chilliwack on June 28

Most Read