Looking beyond the invisible symptoms on World MS Day

For World MS Day Canadians should take a moment to think about the invisible symptoms of MS

You wouldn’t necessarily know it by looking at them, but on average 11 Canadians are diagnosed with multiple sclerosis (MS) every day.

For many, early symptoms are nearly invisible – fatigue, weakness, lack of coordination, vision or bladder problems. Symptoms are often overlooked by even those living with early stages of the disease. Symptoms can also be overlooked by unsuspecting friends, family or colleagues, even after diagnosis which, in some cases, can take years.

READ MORE: MS Walk is Canada’s Duty

Today is World MS Day and this year we’re asking Canadians to take a moment to think about the invisible symptoms of MS and the unseen impact MS can have on a person’s quality of life.

Many individuals affected by MS battle invisible symptoms, including challenges with mental health, numbness, dizziness, weather sensitivity, vision loss, debilitating fatigue and more.

Chances are, they are also living with the stigma of having MS symptoms and wrong assumptions about them. They are often mistaken for being lazy, clumsy or even impaired. Just because someone looks okay on the outside doesn’t mean they aren’t struggling on the inside.

MS is an unpredictable and often disabling disease of the central nervous system. One day your body behaves ordinarily, the next it refuses to listen to you.

There’s no warning. There’s no sign that something has changed from one day to the next, making it difficult for people living without the disease to understand swings in a person’s physical or mental health. The unpredictable and episodic yet progressive nature of MS makes it challenging to maintain financial security and navigate health and community support systems including access to treatments, care, and appropriate housing.

Employment is a key factor in maintaining financial security. The average unemployment rate for people living with MS is 60 percent. People with MS want to work and struggle to continue to work, often because of issues related to lack of flexibility and accommodation.

Fortunately, we’ve come a long way in the last 20 years thanks to the generosity of donors who contributed to help fund critical MS research. In 1998, there were only three types of MS treatments available. Today there are 14 disease modifying therapies approved in Canada for people with relapsing forms of MS to consider as part of their treatment and management of MS.

In the 1990s, a woman living with MS (women are three times more likely to be diagnosed with MS than men) would have had no treatment options and been advised not to have a family, not to work or do any strenuous activity.

She would have felt very insecure because her disease was invisible and not understood by employers, and she would have lived in fear of it getting worse and being alone. Today, a woman living with MS has multiple treatment options, may be told it is ok to continue to work and have a family if she chooses. We’ve come a long way in MS awareness and treatment, but we have a long way still to go.

Over 77,000 Canadians are currently living with MS, one of the highest rates in the world. Let’s work collectively to eradicate stigma around MS and make it easier for individuals affected by the disease to share their stories and experiences with the world.

Tania Vrionis is the President, Alberta & Northwest Territories and BC & Yukon Divisions of the MS Society of Canada.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Comments are closed

Just Posted

QUIZ: Put your knowledge of Canada to the test

How much do you know about our country?

Columbia Basin Trust maps out temporary plan

CBT to engage communities and businesses through online platform

ATCO Wood donates to COVID-19 relief

ATCO donation goes to Greatest Need Fund which enhances patient safety during COVID-19

Mills oppose Celgar’s ask for discounted logs destined for chipper

Smaller mills in the southern Interior are speaking out against a proposal… Continue reading

B.C. man on 700 km walk across Canada

Benjamin Pinch talks dropping everything to fulfill his lifelong dream of walking across the country

‘This year is unlike any other’: Trudeau delivers Canada day address

Sophie Gregoire Trudeau and the Prime Minister release video celebrating the national holiday

PHOTOS: Dual rallies take over Legislature lawn on Canada Day

Resist Canada 153 highlighted colonization and genocide, Unify the People called COVID a hoax

Gov. General honours Canadians for bravery, volunteer service

Five categories of winners presented on Canada Day

COVID-19: Should non-medical masks be mandatory in Canada?

New poll shows Canadians are divided on the rules around mandatory masks

‘A little bit scary for everybody’: Air passengers wary as new rules take effect

Masks or face coverings have been mandatory on flights since April 20

VIDEO: Prince William and Kate chat with B.C. hospital staff about COVID-19

Seven-minute video posted to Youtube on Canada Day

River centre says heavy rains could bring flooding to central, northeastern B.C.

Water levels are already unusually high and river banks can be extremely unstable

Most Read