Tavia Marlatt refused to leave the hospital until she has an at-home care plan. Submitted photo

B.C. epilepsy patient ends sit-in, awaits answers

Tavia Marlatt and her mother, Renee, met with Fraser Health officials on Friday, April 5.

After refusing to leave Vancouver General Hospital until her health care needs were met, Langley’s 22-year-old Tavia Marlatt is a step closer to receiving what she needs.

Tavia suffers from epilepsy, and can have anywhere from six to 50 seizures a day. Last week, she was at VGH undergoing a series of epilepsy tests that revealed she’s been having seizures from three parts of her brain.

READ MORE: Langley epilepsy patient refuses to leave Vancouver hospital until needs are met

Through a YouTube channel, Tavia documented her stay at the hospital, and said she was refusing to leave the hospital until she was given at at-home care plan.

“Basically, what the plan is, is stay here until my needs are met or the police come,” Tavia explained in a YouTube video.

Fortunately, officials from Langley Memorial Hospital agreed to meet with Tavia and her mother, Renee, last Friday to discuss health care options.

Renee explained the family has been asking the Fraser Health Authority for in-home care support at their family home since Tavia turned 19. She said there is a gap in funding from when children age out of school, and become adults.

Prior to the meeting, Renee said Fraser Health has repeatedly denied funding for in-home care, and has instead suggested Tavia live in a group home.

“We want funding released to have staff at home,” she added.

On the same Friday, Tavia agreed to leave the hospital on “good faith” that long-term funding will soon be provided.

Tavia was diagnosed with epilepsy at age seven, and the severity of it increased when she was eleven.

According to Renee, Tavia’s condition was more manageable when she was school-aged, because the family had the support of her being at school during the day, with people who could administer medications if needed.

Since becoming an adult, the medical system has failed Tavia, according to Renee.

“She needs support to be successful, and hasn’t been given the opportunity to be successful, and that’s hard to see. She [Tavia] says, ‘It’s hard to connect and make friends because they’re too independent for me.’ It’s hard to watch her suffer.”

Renee confirmed there is now short-term funding in place.

After Friday’s meeting, Renee said there is now a proposal for long-term services being drafted, and she is hoping to find out more information by the end of this week.

“They [Fraser Health] recognized there’s a gap in services,” added Renee.

“This isn’t just for Tavia, it’s for any person with epilepsy.”

Fraser Health confirmed they met with the Marlatt family.

“We continue to have ongoing conversations and work on a plan to support the patient’s needs,” Fraser Health said in a statement.

Currently Renee is unsure what type of funding they will receive, but hopes it will be long-term funding to access Choice in Supports for Independent Living (CSIL) – a self-directed home support services program.

“The benefit of having individualized funding is you can customize those supports to be responsive and flexible to a person,” added Renee.

Ideally, Renee is hoping for an in-home support system that is able to administer Tavia’s medications, bring her out into the community, and take her to activities such as her volunteer job.

This would also allow Renee to go back to work, since she wouldn’t have to stay home to care for Tavia herself.

“We’re very hopeful those supports will be in place. As a parent, it’s been really encouraging to see her [Tavia] taking a strong role and lead in advocating for people with epilepsy.”

Renee emphasized her and Tavia’s advocacy isn’t just for their own family needs.

“Our goal is that this isn’t just something for Tavia. Hopefully it will further support change for people with epilepsy or invisible disabilities.”

_________________________________

Is there more to this story?

Email: miranda.fatur@langleyadvancetimes.com

Like us on Facebook or follow us on Twitter

_________________________________

Just Posted

Union de Reyes and Trail AM Ford Orioles entertain full house

Union de Reyes, Cuba impressive in series sweep of Trail AM Ford Orioles

First Nations included in latest Columbia River Treaty talks

Seventh round of negotiations between Canada and U.S. wrap up in Washington D.C.

Close to 1000 people expected to hear international evangelist Angus Buchan this weekend

The Mighty Men’s Conference is taking place in Castlegar June 28-30.

Trail celebrates National Indigenous Peoples Day

World renowned hoop dancer entertains crowd at Gyro Park on Sunday

Renowned hoop dance artist performs in Trail park, Sunday

Indigenous Peoples Day welcomes James Jones to Trail; performance at 1 p.m.

Video shows fireworks shot at swan in Alberta

Alberta Fish and Wildlife is investigating the incident in Grande Prairie

‘Text neck’ causing bone spurs to grow from millennials’ skulls, researchers say

Technology use from early childhood causing abnormal bone growths in 41 per cent of young adults

B.C. teen killed by fallen tree on field trip remembered as hero

13-year-old Tai Caverhill was the first to spot the tree falling and warned his friends

Surrey RCMP raises Pride flag amid din of protesters

There were about 30 protesters on either side, and 20 Mounties doing crowd control

Should B.C. get rid of Daylight Saving Time?

The province wants to know, as state governments down south make the move

Air Canada reviewing how crew left sleeping passenger on parked plane

In a Facebook post, the woman said she woke up ‘all alone’ on a ‘cold dark’ aircraft

Canadians crash out of Women’s World Cup in 0-1 loss to Sweden

Canada missed a chance to tie the game on a penalty shot

Four-year-old boy assaulted at B.C. soccer game

It happened at a weekend tournament in Ashcroft

Two bear cubs saved near Revelstoke after mother hit by car

Conservation officers trapped the cubs and transported them to a wildlife sanctuary

Most Read